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They are the most common words we have ever heard. For us it is part of life and we seek support to raise awareness, visualization and location of families.
We are looking for leaders like you, who allow us to make new alliances that lead us to maintain a team that produces a better quality of life for patients and families.
Did you know that with a small contribution we can start our projects, provide different types of help and services, which improve the quality of life of children and their families.
...A family that after many medical tests, received the diagnosis of Sanfilippo Syndrome for their eldest son. Due to the little help and knowledge of the disease, we created a private non-profit organization in March 2019.
We seek the support of friends and different entities that allow us to raise awareness, visualize and locate patients and families affected by this rare disease.