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"I have never heard of Sanfilippo syndrome!"

They are the most common words we have ever heard. For us it is part of life and we seek support to raise awareness, visualization and location of families.

Help us create a community for Sanfilippo Syndrome!

We are looking for leaders like you, who allow us to make new alliances that lead us to maintain a team that produces a better quality of life for patients and families.

Donate Now

Did you know that with a small contribution we can start our projects, provide different types of help and services, which improve the quality of life of children and their families.

We are...

...A family that after many medical tests, received the diagnosis of Sanfilippo Syndrome for their eldest son. Due to the little help and knowledge of the disease, we created a private non-profit organization in March 2019.
We seek the support of friends and different entities that allow us to raise awareness, visualize and locate patients and families affected by this rare disease.

Let's get people talking about Sanfilippo Syndrome and other MPS's.

The diagnosis of Sanfilippo and other MPS's. take an average of 6 to 10 years

Help us locate families

Donate online in Colombia

"I have never heard of Sanfilippo syndrome!"

Help us create a community for Sanfilippo Syndrome!

Donate Now

We are...

Our Allies

Thanks to our allies, we have been able to fulfill the purpose of talking about spreading what is Sanfilippo Syndrome. What are you waiting for, JOIN