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Tell us your story

Help us tell stories of what it is like to live with Sanfilippo and other MPS's.
Telling stories allows us to sensitize the medical staff and society about the difficulties that are experienced behind a diagnosis and about the lifestyle changes that we must make to offer a better tomorrow to each patient.


Fundraise for us

We are always looking for new activities but due to the current restrictions we have not been able to carry out different events that we had planned.
You can organize an event in favor of our foundation.

Do you have an idea?? Contact us.

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